We often think of massage as a relaxing form of self care or something we do to indulge ourselves. However, massage therapy is so much more than a soothing form of holistic care. In many cases, massage therapy is an ideal complement to standard medical care for serious, chronic health conditions. Massage can make a world of difference for someone living with a complex disease. In fact, a medically focused massage session is effective at providing therapeutic relief that can make a significant impact on a person living with lupus.
What Is Lupus?
Lupus is a rare, chronic, autoimmune disease that can be devastating to the body. When someone has an autoimmune disease, their body’s defense system is literally fighting against itself. In a healthy person, viruses, bacteria, and germs are pushed out by antibodies created by the immune system. For someone with lupus, their antibodies cannot differentiate between foreign substances and healthy body tissue. The body’s own tissues are under attack and painful inflammation is a daily reality. Lupus sufferers cope with an ongoing inflammatory response that causes muscle and joint pain, swelling, and damage to the body systems.
Common symptoms of lupus include the following:
- Chronic pain
- Joint pain
- Tissue damage
- Butterfly-shaped rash across the cheeks and bridge of the nose
No two people have the same experience of lupus symptoms. Flares or “flare ups” are a severe expression of the lupus symptoms. Flares may include fatigue, headaches, sensitivity to light, joint pain, facial rashes, high and frequent fevers, dizziness, abdominal discomfort, and forgetfulness. Often, the lupus symptoms go in and out of a “flare up.”A lupus flare varies in intensity from moderately uncomfortable, disruptive of daily living activities and, at times, it can even be life threatening.
Massage Therapy Can Offer Physical Support
Massage therapy’s main goal is to improve blood blow throughout the body using various hands on techniques to stimulate the muscles and tendons. A person with lupus benefits from the increase in circulation brought on by massage therapy. Inflammation, joint pain, and chronic muscle pain are all reduced with massage.
The pain from lupus can be extreme and prevent someone from performing typical daily tasks. Massage therapy is effective at decreasing pain enough for some people, so they may move through their normal activities. Light myofascial techniques can help soften and release adhesions and tightness in muscles that are sore and irritable. Gentle compression techniques can help to flush the tissues and bring fresh blood to joints, muscles, and skin. Also, shiatsu or acupressure style techniques soften connective tissue, and help increase joint mobility. Overall, the stimulation of the muscles helps to move the blood throughout the body. When the fluids in the body are moved, there is less inflammation and therefore less swelling and pressure. With less swelling and pressure, the client feels less pain and has greater ease of movement.
Massage Therapy Can Also Offer Emotional Support
Living with chronic pain is extremely stressful. The whole body may feel tense, and the mind may be racing with worry and concern about the disease (and life in general). An increase in stress puts more pressure on all of the systems of the body and can lead to even more difficult body functioning. Massage helps the body and mind relax, which supports the function of all organ systems and boosts the immune system.
If a client has less pain and can rest and sleep more comfortably, they will have more energy to handle daily tasks and live their life. A person with lupus will feel less depressed or anxious because they are experiencing less pain and can finally sleep. Being able to participate in normal, daily events is encouraging, positive, and lifts the spirit.
Individualized care should be provided to all massage therapy clients. This is especially important when offering medical massage for people living with autoimmune conditions. On the intake form, it is ideal to have a blank drawing of the body, so the client can specifically mark the places of stress, pain, and discomfort. Then take the time to thoroughly discuss with them what they may or may not want from the session. If they have organ dysfunction or tissue damage (i.e. bruising) in an area, it will be crucial to know beforehand because it will inform and guide your massage session.
Also, it is important to know what medications someone is taking when they are living with lupus. For instance, if someone is taking pain medications, they may not feel the pressure of certain types of bodywork (neuromuscular, myofascial, etc.), because they have decreased sensation and the therapist could cause damage to the tissue by working too deeply on the tissues. Or if someone is taking blood thinners, they may bruise easily, so the therapist needs to work very gently. A thorough medical massage intake form covers patient medications. The massage therapist should consider how the patient’s symptoms and medications advise the massage session.
If at all possible, communicate with their healthcare provider before the massage. It is good practice to either receive communication (i.e. referral or recommendation for massage therapy) from a client’s treating physician, or gain permission from the client to speak directly with their health practitioner. A well-connected healthcare team can fully support a client navigating the complicated nature of an illness like lupus.
Most importantly, be sure to meet your client where they are on any given day. If they are unsure about receiving massage because of pain or anxiety, begin on an area of the body that will be the most comfortable for them and adjust accordingly. If they are nervous about lying in a certain position on the massage table, provide options with bolsters and pillows for support. Start the session slow and modify your pressure and technique as you communicate with the lupus client throughout the session.
- Massage is not recommended during a flare.
- Massage is not recommended with someone who has skin lesions.
- Massage is not recommended within two days of infusion therapy.
- Deep tissue massage should be avoided, as it could cause further damage connective tissue.
- Warm/hot treatments should be avoided, because they cause further inflammation.
In order to provide the best possible care for someone coping with lupus, massage therapists need to build connections with their client’s care providers. A well-coordinated plan of care can support a client with a chronic, autoimmune disease. Massage therapy can be a piece of the plan and make a difference in the life of someone with lupus.